Jasmine's Journey
Jasmine has a very rare disease known as Mulibrey Nanism (see right). There are only 113 cases of this disease in the world and Jasmine is thought to be the only case in Australia. Her story can be read at www.jasminesjourney.com.
The Children's Hope Foundation is proud to have been able to assist with support for Jasmine and her family Friend of the foundation, Paul Buch of Ruse Tavern organised a benefit evening which raised over $10,000 for Jasmine. Of this, The Children's Hope Foundation contributed $4,000 by way of a cheque and various donations. | Mulibery Nanism
Mulibrey Nanism Noone has a full understanding about treatment or long-term hope for survival of children suffering from the rare condition known as Mulibrey Nanism.
Restricted growth is evident at birth and is progressive, affecting brain, muscle, liver, eye and skeletal functions.
Jasmine's family is raising money to travel to America to a conference of medical specialists from around the world. They will review Jasmine's medical history and examine her in person. This brave little girl deserves all our best wishes.
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