Beneficiaries

Jasmine's Journey

The Children's Hope Foundation is proud to support a family whose little girl Jasmine has a very rare disease known as Mulibrey Nanism. There are only 113 cases of this disease in the world and Jasmine is thought to be the only case in Australia. Her story can be read at www.jasminesjourney.com.

Friend of the foundation, Paul Buch of Ruse Tavern organised a benefit evening  which raised over $10,000 for Jasmine. Of this, The Children's Hope Foundation contributed $4,000 by way of a cheque and various donations.

Craig Blight & Paula Hodge (centre left) present a cheque to Jasmine, her parents (far right) and grandparents, at the Ruse Tavern event.

 

 

Mulibrey Nanism

Noone has a full understanding about treatment or long-term hope for survival of children suffering from the rare condition known as Mulibrey Nanism.

Restricted growth is evident at birth and is progressive, affecting brain, muscle, liver, eye and skeletal functions.

Jasmine's family is raising money to travel to America to a conference of medical specialists from around the world. They will review Jasmine's medical history and examine her in person. This brave little girl deserves all our best wishes.